Dear Pharma: How About Measuring Patient Centricity?

Dear Pharma: How About Measuring Patient Centricity?

Dear Pharma: How About Measuring Patient Centricity?

So we here are again, my friends. 

Staring down the barrel of an optic we're all just so keen on continuing to ineffectually preen. Everyone and their mother continues to lay claim to drinking the near dogmatic and “moth-to-a-flame” Kool-Aid known as "patient-centricity."

In my previous rants, I brought to light how, currently, there is nothing presently centric about patient centricity. It’s a buzzword pure and simple with no breadth, depth or heft to the phrase whatsoever. I would contend that, in the 10+ years since this phrase first appeared in the stream of conference titles, LinkedIn braggadocio, and marketing slogans, we here on the “patient side” have seen little, if any, measurable results. Have you?

The old adage "if you can't measure it, you can't achieve it" defines this modern-day conundrum. So dear friends, who will be first amongst you to put a metric on Patient Centricity? Lest we forget that there is no one, coalesced and agreed-upon definition that I know of. Please correct me if I am wrong.

Our research, in fact, shows the polar opposite. The verisimilitude of “patient-centricity” has actually made patients feel like less of a priority than ever, especially given today's cost and technology-driven consumer healthcare market.

And yet, the problem is not that people aren't trying. There is no one specific person or company I am throwing under the bus. 

Seriously this time.

In fact, pretty much all Pharma companies and employees charged with creating patient-centric alliances with cancer patient advocacy groups like ours are working diligently—nee feverishly—at this goal.

The hidden reality is that none of these organizations that I am aware of have created metrics to quantify what success looks like. Or what a goal is. Or uniformly agreeing on what it all even means. In this data-driven industry, if patient-centricity is not established with quantifiable metrics, it will always be a distant priority to other performance measures.

That is why Stupid Cancer continues to pioneer, innovate, and disrupt conventional wisdom by its actions. And this year is no different as 2018 marks our 11th year of operations and the hits just keep on coming.

So…………… I am passionately advocating that companies like yours partner with Stupid Cancer—and our mobile partner GRYT Health, which I am a co-founder of—to create these knowingly quantifiable metrics and be successful together.

Beyond our critically important, award-winning programs, services, live events, and digital content influence, Stupid Cancer’s value exchange extends into core B2B competencies catered for Industry From hyper-targeted patient engagement, mobile health, and survivorship research to clinical trials, studies, digital content, video channels, influence marketing, and social reach, let’s make young adult cancer suck less together.

Jill Donahue, Fueling the power of purpose in pharma teams

Enhance MSL Performance | How to Communicate Scientific Information | How to Inspire My MSL Team | How to Build Trust & Culture & Teamwork | Patient-Focused & Purpose-Driven Culture

6y

Love your passion Matthew, And I couldn’t agree more that we can’t manage what we can’t measure. Do you know about the Aurora Project? It’s volunteer group of ~200 global thought leaders who are trying to illuminate commercial pharma’s path to patient centricity. One key initiative is our global survey of over 3,600 pharma associates, patients and solution providers (over 2 years) to measure our patient-centric efforts. If you want to know more - please contact me. We are now compiling the results from the most recent survey. Happy to share (that’s the point of it) when they are ready.

Paul Ivsin

Thinking about clinical trial enrollment

6y

It's important to remember Goodhart's Law here: "When a measure becomes a target, it ceases to be a good measure." Defining metrics and setting targets means that people will chase the number rather than try to live the original goal. I think we are better off simply stopping and asking ourselves periodically: are patients' viewpoints reflected throughout the project? who have we made things better for? what else can we do?

Jayne Gershkowitz

Chief Patient Advocate at Amicus Therapeutics

6y

Several Patient Advocacy professionals, and in turn the companies with which they work, do have metrics for measuring success. In fact, this is part of the first level of coursework of Professional Patient Advocates in Life Sciences (PPALS), a non profit organization dedicated to patient advocacy through education and certification. There is a nascent effort being undertaken by Tufts Center for the Study of Drug Development and DIA to develop a certified and audited program for patient centricity to which industry may eventually subscribe. Independent third-party instruction and validation, in my opinion, is the way to go. Why should Patient Advocacy or engagement be any less rigid than clinical research, CMC, quality, or other integral functions in our industry? Until this happens, it's all subjective. And to me - patient centricity is the sole reason we are in business. That is not and never should be a trend.

Kristin Olson

Senior Director @ Pfizer | Global Policy & Public Affairs (Oncology)

6y

Does this mean you don’t want one of the “Patient Centricity” logo fleece jackets that I just had printed up? They are all the rage. Seriously - great points here and you know I love where you are going with the company.

Patricia Weltin

CEO/Founder Beyond the Diagnosis/Published Citizen Scientist/Architect of State-Based Advocacy/Thought Leader

6y

I loved your article, until it became a sales pitch.

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